9th World Rett Syndrome Congress – Further Postponement

The COVID-19 pandemic causes YET another postponement of the 9th World Rett Syndrome Congress What with the influence that the COVID-19 pandemic is still having around the world, the uncertainty of both travel restrictions and extent of the vaccination process, the Committee of the Rett Syndrome Association of Australia (RSAA) has decided…

Running 4 Andee – Gold Coast Marathon

Andee's father wrote "In July 2019 my then 8 year old daughter was diagnosed with Rett Syndrome."   Rett Syndrome is a rare neurological disorder that affects a person's ability to walk, talk, or purposely use their hands.   Rett Syndrome is like having Cerebral Palsy, Epilepsy, Autism, Parkinson's, anxiety, and breathing…

Novartis and gene therapy to treat Rett Syndrome.

Novartis, a multinational biotechnology company, issued a statement in August 2020 to confirm full commitment to their gene therapy program for Rett Syndrome. This was followed by a press release from the company in March 2021 which reported recent results of gene therapy to treat patients with spinal muscular atrophy…

New hope for girls with Rett Syndrome

ANAVEX®2-73 - A drug used to help adult Alzheimer’s patients may offer hope to young girls with Rett syndrome. In a new clinical trial being led by The Children’s Hospital at Westmead, doctors are testing whether ANAVEX®2-73 can help improve some of the devastating features of Rett syndrome including their…

9th World Rett Syndrome Congress: Postponed to 2021

When: 29 September to 2 October 2021 Location: Surfers Paradise, Queensland RSAA first mooted the suggestion that the 9th World Rett Syndrome Congress take place in Australia at the RTT 50.1 conference held in Vienna in September 2016, an event which marked the 50th anniversary of the first publication on Rett syndrome. …

9th World Rett Syndrome Congress is to be held in Australia in late 2020

When: 30 September to 3 October 2020 Location: Surfers Paradise, Queensland RSAA first mooted the suggestion that the 9th World Rett Syndrome Congress take place in Australia at the RTT 50.1 conference held in Vienna in September 2016, an event which marked the 50th anniversary of the first publication on Rett syndrome. …

Claude Buda is RSAA’s new President

Claude Buda, father of 8 year old Annelise who has Rett syndrome, was elected to the position of President of the Rett Syndrome Association of Australia (RSAA) at the Association’s annual general meeting which was held in Melbourne. Claude lives in Sydney. Bill Callaghan, who has been RSAA President since…
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