Formed in Melbourne in July 1989, the Rett Syndrome Association of Australia Inc. (RSAA) is a not-for-profit organisation which is managed by a Committee of volunteers, most of whom are parents of Rett syndrome children. The Association seeks to enhance the quality of life for persons with the syndrome and their families, and be of assistance to anyone interested in the disorder. July 2020 will mark the 31st anniversary of the Association.

Members of  the RSAA Committee for the period 1 July 2019 to 30 June 2020 are as follows:



Claude Buda (NSW)


Bill Callaghan (VIC)


Dagmar Lockwood (SA) 


Tony Cagliuso (SA)

Family Support Co-ordinator   

Sue Hallenstein (VIC)


Other members:

Jayne Bowden (TAS)    

Elizabeth Davies (VIC)

Caroline Fitzpatrick (WA) .

Eric Gowans (SA)

Olivia Gowans (SA)

Kristy Klingner (SA)   

Mary-Anne Rome (VIC)

Georgia White (NSW)

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