Formed in Melbourne in July 1989, the Rett Syndrome Association of Australia Inc. (RSAA) is a not-for-profit organisation which is managed by a Committee of volunteers, most of whom are parents of Rett syndrome children. The Association seeks to enhance the quality of life for persons with the syndrome and their families, and be of assistance to anyone interested in the disorder. July 2020 will mark the 31st anniversary of the Association.

Members of  the RSAA Committee for the period 1 July 2019 to 30 June 2020 are as follows:



Claude Buda (NSW)


Bill Callaghan, OAM. (VIC)

Bill Callaghan was President of RSAA from its formation in 1989 until 2018 and lives in Geelong, Victoria. His daughter, Joanne, who was diagnosed with Rett syndrome in 1986, passed away in 2004, 11 days short of her 33rd birthday. Bill was awarded the Medal of the Order of Australia in the Queen’s Birthday Honours announced by the Commonwealth Government of Australia in June 2012 for “Service to community health through the Rett Syndrome Association of Australia”.


Dagmar Lockwood (SA) 

Dagmar Lockwood joined RSAA in  2017 and lives in Adelaide, South Australia with her husband and 2 children. Her daughter Madeleine was diagnosed with Rett syndrome in 2012 and is 20 years old. Dagmar works as a hospital coordinator at Flinders Medical Centre and in her spare time is a Lieutenant in the Navy Reserves.


Tony Cagliuso (SA)

Family Support Co-ordinator   

Sue Hallenstein (VIC)


Other members:

Jayne Bowden (TAS)    

Elizabeth Davies (VIC)

Caroline Fitzpatrick (WA) .

Eric Gowans (SA)

Olivia Gowans (SA)

Kristy Klingner (SA)   

Mary-Anne Rome (VIC)

Georgia White (NSW)

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