RSAA Privacy Policy

We respect your privacy

Your privacy is vitally important to us and RSAA is committed to doing everything possible to protect it. We will regularly review our Privacy Policy and procedures to ensure they comply with current legislation and reflect feedback from you.

What personal information do we collect?

We collect only as much information as is necessary and it is usually the information that a member or donor would expect us to collect e.g. name, address, email address, phone number. We also record the types of contacts we might have with you such as membership of RSAA, relationship to a Rett Syndrome person, donations you have made and subscriptions to our email lists etc.

How do we collect and use the information?

We collect information from you when you make a donation, join RSAA, attend a workshop or seminar, subscribe to our email lists and we use this information so that we can ensure that our contacts with you are consistent with the contacts you have with us and that any messages are tailored specifically to your needs.


All of your data is held on secure servers, generally in an encrypted format. All data is password protected and only accessible by authorised RSAA committee members or their delegates

How long do we retain your data?

If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognize and approve any follow-up comments automatically instead of holding them in a moderation queue.

How do we protect your data?

Wherever possible, your data is held by Third Parties such as Mailchimp (for email contact purposes and membership renewal reminders) and only a limited number of authorised members of the RSAA committees have access to and are able to change or update this data.

What rights do you have over your data?

If you have provided us with information to become a member of RSAA or you have made a donation to RSAA , or have left comments on the website, you can request a copy of the personal data we hold about you, You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.

Disclosure of your information

We will never disclose any of your information for any purpose unless we are compelled to by an Australian Court and your data will never be released to a third party for marketing purposes.


We use Google Analytics to track all visitors to our website so that we know what information is being accessed. We need this data to ensure the information on our website is relevant to our audience. For users that register on our website (if any), we also store the personal information they provide in their user profile. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.


If you leave a comment on our site you may opt-in to save your name, email address and website in cookies. These are for your convenience so that you do not have to fill in your details again when you leave another comment. These cookies will last for one year. If you visit our login page, we will set a temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser. When you log in, we will also set up several cookies to save your login information and your screen display choices. Login cookies last for two days, and screen options cookies last for a year. If you select “Remember Me”, your login will persist for two weeks. If you log out of your account, the login cookies will be removed. If you edit or publish an article, an additional cookie will be saved in your browser. This cookie includes no personal data and simply indicates the post ID of the article you just edited. It expires after 1 day.

Comments left on our website

When visitors leave comments on the site, we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.

Your profile picture

An anonymised string created from your email address (also called a hash) may be provided to the Gravatar service to see if you are using it. The Gravatar service privacy policy is available here: After approval of your comment, your profile picture is visible to the public in the context of your comment. Visitor comments may be checked through an automated spam detection service.

Media uploaded to our website

If you upload images to the website, you should avoid uploading images with embedded location data (EXIF GPS) included. Visitors to the website can download and extract any location data from images on the website.

Embedded content from other websites

Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website. These websites may collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracking your interaction with the embedded content if you have an account and are logged in to that website.

Complaints or Concerns

If you have any complaints about your data that we are holding you should address these to the RSAA Privacy Officer, a position held ex-officio by the President of the RSAA.