What is

RETT

syndrome?

Rett syndrome (RTT) which is seen almost exclusively in females, is a genetic disorder in which the brain does not mature in the way it should. For most affected children, their early development appears normal but then slows down or suddenly halts.

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We are

RSAA

Formed in Melbourne in July 1989, the Rett Syndrome Association of Australia Inc. (RSAA) is a not-for-profit organisation which is managed by a Committee of volunteers, most of whom are parents of children with Rett syndrome.

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Truly amazing support!!! the $500 Bunnings voucher raffle sold out in under 24hours and the winner is Rosie Rigby, Rett Mum from NSW.  We would like to thank everyone who bought a ticket and apologise to all those who missed out, we did not expect that the raffle would be a sell-out so quick.
Thank you to Bunnings, our RSAA Committee member Rett mum Olivia Gowans (who organised the voucher and raffle), and all who bought a ticket to support the Rett Syndrome Association of Australia, we are very grateful .#bunnings

Truly amazing support!!! the $500 Bunnings voucher raffle sold out in under 24hours and the winner is Rosie Rigby, Rett Mum from NSW. We would like to thank everyone who bought a ticket and apologise to all those who missed out, we did not expect that the raffle would be a sell-out so quick.
Thank you to Bunnings, our RSAA Committee member Rett mum Olivia Gowans (who organised the voucher and raffle), and all who bought a ticket to support the Rett Syndrome Association of Australia, we are very grateful .#bunnings
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Comment on Facebook

Great work Has there been an update on the efficacy of 2-73 ?

Once again, I am very pleased to announce we now have a 5th Anavex2-73 trial site in Australia. The RS002 study, for adults aged 18- 35, is in Perth at the QEII Medical Centre Nedlands. The site is up and running and will start screening potential candidates this week. If you live in WA and are interested in participating in the trial please contact me directly.

Once again, I am very pleased to announce we now have a 5th Anavex2-73 trial site in Australia. The RS002 study, for adults aged 18- 35, is in Perth at the QEII Medical Centre Nedlands. The site is up and running and will start screening potential candidates this week. If you live in WA and are interested in participating in the trial please contact me directly. ... See MoreSee Less

Stories

Alana
Jovie
Eva
Alana

Melbourne

Alana has enriched our lives. I am blessed to have a very placid daughter who has undergone surgeries and numerous investigations, endured pain and suffered many seizures. She never ceases to astound me with her amazing inner strength and determination.

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Jovie

Melbourne

It is a long established fact that a reader will be distracted by the readable content of a page when looking at its layout. The point of using Lorem Ipsum is that it has a more-or-less normal distribution of letters, as opposed to using 'Content here,

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Eva

Melbourne

It is a long established fact that a reader will be distracted by the readable content of a page when looking at its layout. The point of using Lorem Ipsum is that it has a more-or-less normal distribution of letters, as opposed to using 'Content here,

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