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ANAVEX®2-73 - A drug used to help adult Alzheimer’s patients may offer hope to young girls with Rett syndrome. In a new clinical trial being led by The Children’s Hospital at Westmead, doctors are testing whether ANAVEX®2-73 can help improve some of the devastating features of Rett syndrome including their…

When: 29 September to 2 October 2021 Location: Surfers Paradise, Queensland RSAA first mooted the suggestion that the 9th World Rett Syndrome Congress take place in Australia at the RTT 50.1 conference held in Vienna in September 2016, an event which marked the 50th anniversary of the first publication on Rett syndrome. …

Anavex 2-73 is a drug developed by Anavex Life Sciences Corporation, a biopharmaceutical company based in New York, which when used in a mouse model of Rett syndrome, assessed muscular co-ordination, balance, motor learning and muscle strength. To quote from Anavex's media release issued in New York on 18 March…

4 February 2019 – Neuren Pharmaceuticals advised the Australian Stock Exchange, Melbourne, of a statement released by ACADIA Pharmaceuticals about its plans for the Phase 3 trial of trofinetide in Rett syndrome. As with Phases 1 and 2, the trial will be held in the US. In part, ACADIA stated that “We…

When: 30 September to 3 October 2020 Location: Surfers Paradise, Queensland RSAA first mooted the suggestion that the 9th World Rett Syndrome Congress take place in Australia at the RTT 50.1 conference held in Vienna in September 2016, an event which marked the 50th anniversary of the first publication on Rett syndrome. …

Claude Buda, father of 8 year old Annelise who has Rett syndrome, was elected to the position of President of the Rett Syndrome Association of Australia (RSAA) at the Association’s annual general meeting which was held in Melbourne. Claude lives in Sydney. Bill Callaghan, who has been RSAA President since…

‘Rett syndrome research, towards the future‘ was the theme of a recent conference  held in Rome on 27-29 September 2018. The aim, of what was essentially a meeting of scientists, was to provide an opportunity to discuss recent advances in Rett syndrome research. Rett Rome 2018 Program - conference programme.…

April 2018 – A study to evaluate the effectiveness, safety and tolerability of the drug Sarizotan involving individuals with Rett syndrome who have breathing abnormalities, has finally got underway in Australia. Other participating countries are India, Italy, the United Kingdom and the United States. This research is being sponsored by…

Today (22 March 2017), Neuren Pharmaceuticals announced to the Australian Stock Exchange in Melbourne that its Phase 2 trial of treatment of Rett syndrome girls aged from 5 to 15 years with trofinetide, showed that it was of benefit for them.  Neuren's actual announcement can be viewed by clicking on…

Susan Norwell M.A. Special Education, has spent the last 27 years in private practice working primarily with children on the autism spectrum and girls who have Rett syndrome. Her current focus is in teaching literacy skills for children with significant disabilities who are unable to speak, utilising augmentative communication and technology supports.   She is…