Annual Report

The draft Annual Report for 2019-2020 is now available for viewing and downloading.   The report will be presented at the Annual General Meeting on 31st October 2020. To open the report please click the link below.   RSAA annual report 2019-2020 semi final

Annual General Meeting

Dear RSAA Members Our AGM will be held on Saturday 31st October 2020 at: 4.00 pm (AEDT), 3.30 pm (SA Time), 3.00 pm (OLD Time) 1.00 pm (WA Time).   As COVID 19 prevents us from meeting in person, the AGM will be held online. You are invited to join the meeting and we would…

New hope for girls with Rett Syndrome

A drug used to help adult Alzheimer’s patients may offer hope to young girls with Rett syndrome. In a new clinical trial being led by The Children’s Hospital at Westmead, doctors are testing whether ANAVEX®2-73 can help improve some of the devastating features of Rett syndrome including their ability to…

9th World Rett Syndrome Congress: Postponed to 2021

When: 29 September to 2 October 2021 Location: Surfers Paradise, Queensland RSAA first mooted the suggestion that the 9th World Rett Syndrome Congress take place in Australia at the RTT 50.1 conference held in Vienna in September 2016, an event which marked the 50th anniversary of the first publication on Rett syndrome. …

9th World Rett Syndrome Congress is to be held in Australia in late 2020

When: 30 September to 3 October 2020 Location: Surfers Paradise, Queensland RSAA first mooted the suggestion that the 9th World Rett Syndrome Congress take place in Australia at the RTT 50.1 conference held in Vienna in September 2016, an event which marked the 50th anniversary of the first publication on Rett syndrome. …

Claude Buda is RSAA’s new President

Claude Buda, father of 8 year old Annelise who has Rett syndrome, was elected to the position of President of the Rett Syndrome Association of Australia (RSAA) at the Association’s annual general meeting which was held in Melbourne. Claude lives in Sydney. Bill Callaghan, who has been RSAA President since…
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