Further information about the Congress can be viewed by clicking on the following link http://www.worldcongress2016.rettsyndrome.ru/ World Congress - Kazan, Russia - May 2016Olga Timutsa (President of the Russian RettSyndrome Association (second from right) with,at far left, Nasim Bahran (Children's Hospital,Westmead, Sydney), Tony Cagliuso (RSAA),Helen Leonard (Australian Rett Syndrome Study) and Claude Buda (RSAA)
An appreciation of what Susan is about can be gained by accessing Susan Norwell Professional Development
CELEBRATING the 50th anniversary of the first publication on Rett syndrome by Dr Andreas Rett, the meeting in Vienna reviewed "Where are we right now?" in terms of research (past and present) and overall knowledge of the disorder.
Gathering - "Mandoon Estate", Swan River Valley, Perth Dinner - "Modo Mia Italian" restaurant, The burswood, Perth
Eleven Rett syndrome families represented at what was a very successful day.
Pleasant afternoon enjoyed by members of 10 Rett syndrome families.
Approximately 200 people attended the screening of the acclaimed documentary "The Eagle Huntress", an occasion organised by Shelley and Peter Morley in memory of their Rett syndrome daughter Ella and as a fundraiser for the Rett Syndrome Association of Australia. Ella, who passed away in 2008, would have been 21 in July of this year. […]
Guest speaker: James Shaw (Vice-President, Clinical Operations, Neuren Pharmaceuticals) Topic: Trofinetide: The Journey to Phase III.
RSAA was represented at the Congress by its Vice-President Claude Buda. Claude (at left), Paige Nues (rettsyndrome.org) (USA) and Walter Kaufmann (Boston Children's Hospital)
If wishing to eat, please bring along your own food. However, soft drink will be available, as too, will facilities for making tea/coffee. If attending, please call 0418 561 796 or email [email protected]
Use of the carousel - The carousel has 4 wheelchair anchor in points, plus a ramp. It also has benches for those who don’t use a wheelchair but may be a bit wobbly to sit on a horse. There is a lovely grassed area with picnic tables and benches as well as shade should you […]
There will be a sausage sizzle with salads and soft drinks for all to enjoy. Please RSVP to Claude Buda via Facebook or call 0411 089 156 to enable him to know how many persons to cater for.
