Rett Syndrome Association of Australia
The Rett Syndrome Association of Australia Inc. (RSAA) was established in Melbourne in 1989 in response to the needs of Australian children and adults with Rett syndrome and their families. The Association does not have its own premises. It’s Australian Business Number (ABN) is 55 128 238 122 and is managed by a committee of 13 volunteers (mostly parents) from across Australia.
How to get in touch with RSAA
Registered office:
Rett Syndrome Association of Australia Inc.
74 Peter St Grovedale Vic 3216
Phone 0418 561 796
Email info@rettaustralia.org.au
What does RSAA do?
- Liaise with and, if possible, provide assistance to those involved in Australian studies on the syndrome
- Arrange regular gatherings of Rett syndrome families across Australia
- Represent the Association at selected local and overseas Rett conferences
- Raise awareness of the disorder
- Liaise with overseas Rett Syndrome Associations
- Support families affected by Rett syndrome
- Provide assistance to Rett syndrome research
- Conference organisation, with our next event being the staging of the 9th World Rett Syndrome Congress. It was to be held in Surfers Paradise in 2020 but has been postponed to 2024
- Promotion of family participation in drug clinical trials conducted in Australia together with provision of financial assistance with accommodation and travel
- Collect, catalogue and share information
- Production of a regular newsletter to members and donors
- Provision of an RSAA website www.rettaustralia.org.au and Facebook site https://www.facebook.com/rettaustralia/ and administration of the closed ‘Rett Syndrome Australia’ Facebook site https://www.facebook.com/groups/15688775612/
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