{"id":16,"date":"2013-08-30T14:23:00","date_gmt":"2013-08-30T04:53:00","guid":{"rendered":"http:\/\/localhost\/rettaustralia\/?page_id=16"},"modified":"2022-06-23T15:54:49","modified_gmt":"2022-06-23T05:54:49","slug":"past-events","status":"publish","type":"page","link":"https:\/\/rettaustralia.org.au\/news-events\/past-events\/","title":{"rendered":"Past Events"},"content":{"rendered":"

Sunday 3 December 2017<\/h4>\n

Rett syndrome gathering | Semaphore, South Australia<\/h3>\n

Venue:<\/strong> Semaphore Carousel, 81 The Esplanade, Semaphore.
\nTime:<\/strong> 11am to 2pm.<\/p>\n

Use of the carousel – The carousel has 4 wheelchair anchor in points, plus a ramp. It also has benches for those who don’t use a wheelchair but may be a bit wobbly to sit on a horse.<\/p>\n

There is a lovely grassed area with picnic tables and benches as well as shade should you wish to enjoy a picnic lunch. Please BYO food and drinks. <\/p>\n

If attending, please email kirstysale@live.com.au<\/a> or phone\/message 0434 371 729, by 27 November.<\/p>\n

 <\/p>\n

Sunday 19 November 2017<\/h4>\n

Rett syndrome gathering | Penrith, New South Wales           <\/h3>\n

Venue:<\/strong> Tench Reserve, Tench Ave, Penrith.
\nCommencement:<\/strong> 11am.<\/p>\n

There will be a sausage sizzle with salads and soft drinks for all to enjoy. Please RSVP to Claude Buda via Facebook or call 0411 089 156 to enable him to know how many persons to cater for.<\/p>\n

 <\/h4>\n

Sunday 19 November 2017<\/h4>\n

Rett syndrome gathering | Glen Waverley, Victoria<\/h3>\n

Venue:<\/strong> GlenAllen School, 7 Allen St, Glen Waverley.
\nTime:<\/strong> 12.30pm to 4pm. <\/p>\n

If wishing to eat, please bring along your own food. However, soft drink will be available, as too, will facilities for making tea\/coffee. If attending, please call 0418 561 796 or email  rettaust@bigpond.com<\/a> <\/p>\n

 <\/h4>\n

2-4 November 2017<\/h4>\n

5th European Rett Syndrome Congress | Berlin, Germany<\/h3>\n

Venue:<\/strong> Vienna House Andels, Landsberger Allee 106, Berlin.<\/p>\n

RSAA was represented at the Congress by its Vice-President Claude Buda.  <\/p>\n

\"\"
Claude (at left), Paige Nues (rettsyndrome.org) (USA) and Walter Kaufmann (Boston Children’s Hospital)<\/figcaption><\/figure>\n

A copy of the Congress Report can be viewed by clicking on https:\/\/www.rettsyndrome.eu\/news\/berlin-congress-report\/ <\/a><\/p>\n

 <\/p>\n

 <\/p>\n

Saturday 23 September 2017<\/h4>\n

2016\/17 RSAA annual general meeting | Sunshine West, Victoria<\/h3>\n

Venue:<\/strong> Global Food Equipment, 6 Grace Court, Sunshine West, Melbourne.<\/p>\n

Guest speaker:<\/strong> James Shaw (Vice-President, Clinical Operations, Neuren Pharmaceuticals)<\/p>\n

Topic:<\/strong> Trofinetide: The Journey to Phase III.  <\/p>\n

 <\/p>\n

 <\/p>\n

Sunday 2 July 2017<\/h4>\n

Big Screen Charity Gala | Healesville, Victoria<\/h3>\n

Venue:<\/strong> Memo Hall, Healesville.<\/p>\n

Approximately 200 people attended the screening of the acclaimed documentary “The Eagle Huntress”, an occasion organised by Shelley and Peter Morley in memory of their Rett syndrome daughter Ella and as a fundraiser for the Rett Syndrome Association of Australia. Ella, who passed away in 2008, would have been 21 in July of this year.
\nA photo of her can be viewed by clicking on the following file:
\nElla 21 flyer a<\/a><\/p>\n

 <\/h4>\n

Sunday 19 March 2017<\/h4>\n

Rett syndrome gathering |Deer Park, Victoria<\/h3>\n

Venue:<\/strong> Deer Park Club, Melbourne.<\/p>\n

Pleasant afternoon enjoyed by members of 10 Rett syndrome families.<\/p>\n

 <\/p>\n

 <\/p>\n

Saturday 18 March 2017<\/h4>\n

Rett syndrome gathering | Semaphore, South Australia<\/h3>\n

Venue:<\/strong> Semaphore Carousel, Adelaide.<\/p>\n

Eleven Rett syndrome families represented at what was a very successful day. <\/p>\n

 <\/p>\n

 <\/p>\n

15 October 2016<\/h4>\n

Rett syndrome gathering and dinner | Perth, Western Australia<\/h3>\n

Gathering<\/strong> – “Mandoon Estate”, Swan River Valley, Perth<\/p>\n

Dinner<\/strong> – “Modo Mia Italian” restaurant, The burswood, Perth<\/p>\n

 <\/p>\n

 <\/p>\n

15-17 September 2016<\/h4>\n

RTT50.1 | Vienna, Austria<\/h3>\n

CELEBRATING the 50th anniversary of the first publication on Rett syndrome by Dr Andreas Rett, the meeting in Vienna reviewed “Where are we right now?” in terms of research (past and present)  and overall knowledge of the disorder.<\/p>\n

 <\/p>\n

 <\/p>\n

27 May 2016<\/h4>\n

Susan Norwell (USA) presents “Learning and Communication Strategies in Rett Syndrome” | Brisbane, Queensland<\/h3>\n

Venue:<\/strong> Brisbane International, Boondall.<\/p>\n

An appreciation of what Susan is about can be gained by accessing  Susan Norwell Professional Development<\/p>\n

 <\/h4>\n

 <\/h4>\n

13-17 May 2016<\/h4>\n

8th World Congress on Rett Syndrome | Kazan, Russia<\/h3>\n

Further information about the Congress can be viewed by clicking on the following link   8th World Congress Report<\/a> <\/p>\n

\"\"
World Congress – Kazan, Russia – May 2016 Olga Timutsa (President of the Russian Rett Syndrome Association (second from right) with, at far left, Nasim Bahran (Children’s Hospital, Westmead, Sydney), Tony Cagliuso (RSAA), Helen Leonard (Australian Rett Syndrome Study)  and Claude Buda (RSAA)<\/figcaption><\/figure>\n

 <\/p>\n

 <\/p>\n

19-21 November 2015<\/h4>\n

First RSAA National Conference | Geelong, Victoria<\/h3>\n

Venue:<\/strong> Novotel Geelong<\/p>\n

Conference theme:<\/strong> “The Rett Syndrome Journey: Pathways to Follow”<\/p>\n

Additional information about this event (including videos of most sessions) can be found on this website by clicking on the ‘About Rett syndrome’ tab above, then selecting ‘Selected resources specific to Rett syndrome’.<\/p>\n","protected":false},"excerpt":{"rendered":"

Sunday 3 December 2017 Rett syndrome gathering | Semaphore, South Australia Venue: Semaphore Carousel, 81 The Esplanade, Semaphore. Time: 11am to 2pm. Use of the carousel – The carousel has […]<\/p>\n","protected":false},"author":2,"featured_media":2150,"parent":52,"menu_order":713,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_kad_blocks_custom_css":"","_kad_blocks_head_custom_js":"","_kad_blocks_body_custom_js":"","_kad_blocks_footer_custom_js":"","ngg_post_thumbnail":0,"footnotes":""},"taxonomy_info":[],"featured_image_src_large":false,"author_info":{"display_name":"Gary Grocott","author_link":"https:\/\/rettaustralia.org.au\/author\/garyg\/"},"comment_info":0,"_links":{"self":[{"href":"https:\/\/rettaustralia.org.au\/wp-json\/wp\/v2\/pages\/16"}],"collection":[{"href":"https:\/\/rettaustralia.org.au\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/rettaustralia.org.au\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/rettaustralia.org.au\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/rettaustralia.org.au\/wp-json\/wp\/v2\/comments?post=16"}],"version-history":[{"count":4,"href":"https:\/\/rettaustralia.org.au\/wp-json\/wp\/v2\/pages\/16\/revisions"}],"predecessor-version":[{"id":5399,"href":"https:\/\/rettaustralia.org.au\/wp-json\/wp\/v2\/pages\/16\/revisions\/5399"}],"up":[{"embeddable":true,"href":"https:\/\/rettaustralia.org.au\/wp-json\/wp\/v2\/pages\/52"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rettaustralia.org.au\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/rettaustralia.org.au\/wp-json\/wp\/v2\/media?parent=16"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}