{"id":12,"date":"2013-08-30T14:22:20","date_gmt":"2013-08-30T04:52:20","guid":{"rendered":"http:\/\/localhost\/rettaustralia\/?page_id=12"},"modified":"2022-06-23T14:56:38","modified_gmt":"2022-06-23T04:56:38","slug":"clinics","status":"publish","type":"page","link":"https:\/\/rettaustralia.org.au\/about-rett-syndrome\/clinics\/","title":{"rendered":"Clinics"},"content":{"rendered":"
Located at:<\/p>\n
* The Children’s Hospital at Westmead, Sydney (Rett Syndrome Multidisciplinary Management Clinic)<\/p>\n
* The Royal Children’s Hospital, Melbourne (Neurodevelopmental and Disability Department)<\/p>\n
* Queensland Children’s Hospital, Brisbane (Child Development Program)<\/p>\n
Clinics provide support for parents to discuss management of their Rett Syndrome child’s general health, mobility, spine, feeding, nutrition, seizures if applicable, communication, hand function, etc., with a number of health professionals. Each clinic operates differently so although some information is summarised below, we recommend that the clinics are contacted directly.<\/p>\n
The hospital has a monthly dedicated Rett Syndrome Multidisciplinary Management Clinic bringing together a range of experts including a dentist, geneticist, genetic counsellor, music therapist, occupational therapist, paediatrician, physiotherapist and a speech pathologist. An orthotist and\/or a neurologist can be called upon during a consultation should the need arise. Management issues are addressed on the last Friday of the month and new patient assessments on the 2nd Friday.<\/p>\n
Appointments can be made by phoning the Rett Syndrome Clinic Co-ordinator, Lyndal Douglas, on +61 2 9845 3218 or +61 2 9845 3654<\/p>\n
The Clinic is now funded by the Hospital, however, from 2004 to 2009, the financial support it needed to operate was provided by the Rett Syndrome Australian Research Fund.<\/p>\n
For more information: Metabolic Genetics at The Children’s Hospital at Westmead<\/p>\n
https:\/\/www.schn.health.nsw.gov.au\/find-a-service\/metabolic-genetic-disorders\/chw <\/a><\/p>\n Medical staff in the Neurodevelopmental and Disability Department provide a secondary referral outpatient service. The service can be accessed by a referral from a Paediatrician or, in special cases, by a GP. RCH provides support to children in Victoria, Tasmania and Southern NSW. Reports are sent to the referring Paediatrician and parents and include care plans and recommendations for screening frequency. Children can be referred for repeat assessments and RCH is able to undertake care sharing with Paediatricians.<\/p>\n Contact: Telephone: +61 3 9345 5898 Email: neurodev@rch.org.au<\/p>\n For more information: Neurodevelopmental and Disability Department<\/p>\nRoyal Children’s Hospital (RCH), Melbourne<\/h3>\n