Sunday 3 December 2017

Rett syndrome gathering | Semaphore, South Australia

Venue: Semaphore Carousel, 81 The Esplanade, Semaphore.
Time: 11am to 2pm.

Use of the carousel – The carousel has 4 wheelchair anchor in points, plus a ramp. It also has benches for those who don’t use a wheelchair but may be a bit wobbly to sit on a horse.

There is a lovely grassed area with picnic tables and benches as well as shade should you wish to enjoy a picnic lunch. Please BYO food and drinks. 

If attending, please email [email protected] or phone/message 0434 371 729, by 27 November.


Sunday 19 November 2017

Rett syndrome gathering | Penrith, New South Wales           

Venue: Tench Reserve, Tench Ave, Penrith.
Commencement: 11am.

There will be a sausage sizzle with salads and soft drinks for all to enjoy. Please RSVP to Claude Buda via Facebook or call 0411 089 156 to enable him to know how many persons to cater for.


Sunday 19 November 2017

Rett syndrome gathering | Glen Waverley, Victoria

Venue: GlenAllen School, 7 Allen St, Glen Waverley.
Time: 12.30pm to 4pm. 

If wishing to eat, please bring along your own food. However, soft drink will be available, as too, will facilities for making tea/coffee. If attending, please call 0418 561 796 or email  [email protected] 


2-4 November 2017

5th European Rett Syndrome Congress | Berlin, Germany

Venue: Vienna House Andels, Landsberger Allee 106, Berlin.

RSAA was represented at the Congress by its Vice-President Claude Buda.  

Claude (at left), Paige Nues ( (USA) and Walter Kaufmann (Boston Children’s Hospital)

A copy of the Congress Report can be viewed by clicking on 



Saturday 23 September 2017

2016/17 RSAA annual general meeting | Sunshine West, Victoria

Venue: Global Food Equipment, 6 Grace Court, Sunshine West, Melbourne.

Guest speaker: James Shaw (Vice-President, Clinical Operations, Neuren Pharmaceuticals)

Topic: Trofinetide: The Journey to Phase III.  



Sunday 2 July 2017

Big Screen Charity Gala | Healesville, Victoria

Venue: Memo Hall, Healesville.

Approximately 200 people attended the screening of the acclaimed documentary “The Eagle Huntress”, an occasion organised by Shelley and Peter Morley in memory of their Rett syndrome daughter Ella and as a fundraiser for the Rett Syndrome Association of Australia. Ella, who passed away in 2008, would have been 21 in July of this year.
A photo of her can be viewed by clicking on the following file:
Ella 21 flyer a


Sunday 19 March 2017

Rett syndrome gathering |Deer Park, Victoria

Venue: Deer Park Club, Melbourne.

Pleasant afternoon enjoyed by members of 10 Rett syndrome families.



Saturday 18 March 2017

Rett syndrome gathering | Semaphore, South Australia

Venue: Semaphore Carousel, Adelaide.

Eleven Rett syndrome families represented at what was a very successful day. 



15 October 2016

Rett syndrome gathering and dinner | Perth, Western Australia

Gathering – “Mandoon Estate”, Swan River Valley, Perth

Dinner – “Modo Mia Italian” restaurant, The burswood, Perth



15-17 September 2016

RTT50.1 | Vienna, Austria

CELEBRATING the 50th anniversary of the first publication on Rett syndrome by Dr Andreas Rett, the meeting in Vienna reviewed “Where are we right now?” in terms of research (past and present)  and overall knowledge of the disorder.



27 May 2016

Susan Norwell (USA) presents “Learning and Communication Strategies in Rett Syndrome” | Brisbane, Queensland

Venue: Brisbane International, Boondall.

An appreciation of what Susan is about can be gained by accessing  Susan Norwell Professional Development



13-17 May 2016

8th World Congress on Rett Syndrome | Kazan, Russia

Further information about the Congress can be viewed by clicking on the following link   8th World Congress Report 

World Congress – Kazan, Russia – May 2016 Olga Timutsa (President of the Russian Rett Syndrome Association (second from right) with, at far left, Nasim Bahran (Children’s Hospital, Westmead, Sydney), Tony Cagliuso (RSAA), Helen Leonard (Australian Rett Syndrome Study)  and Claude Buda (RSAA)



19-21 November 2015

First RSAA National Conference | Geelong, Victoria

Venue: Novotel Geelong

Conference theme: “The Rett Syndrome Journey: Pathways to Follow”

Additional information about this event (including videos of most sessions) can be found on this website by clicking on the ‘About Rett syndrome’ tab above, then selecting ‘Selected resources specific to Rett syndrome’.

RETT Syndrome Association of Australia