About RSAA


Formed in Melbourne in July 1989, the Rett Syndrome Association of Australia Inc. (RSAA) is a not-for-profit organisation which is managed by a Committee of volunteers, most of whom are parents of Rett syndrome children. The Association seeks to enhance the quality of life for persons with the syndrome and their families, and be of assistance to anyone interested in the disorder. July 2019 will mark the 30th anniversary of the Association.

Members of  the RSAA Committee for the period 1 July 2018 to 30 June 2019 are as follows:



Claude Buda (NSW)


Bill Callaghan (VIC)


Karren Rodda (SA) 


Tony Cagliuso (SA)

Family Support Co-ordinator   

Sue Hallenstein (VIC)

Other members:

Jayne Bowden (TAS)    

Elizabeth Davies (VIC)

Michelle Denniss (QLD)

Eric Gowans (SA)

Kristy Klingner (SA)   

Dagmar Lockwood (SA) 

Mary-Anne Rome (VIC)

Kirsty Sale (SA)

Madeleine Saric (VIC)

Georgia White (NSW)

Caroline Fitzpatrick (WA) .

To contact us, please click here.