Events

 

Each of the following events is Rett syndrome-related i.e., it includes a focus on the syndrome, regardless of what the extent of that focus is.

 

Sunday 3 December 2017
Rett syndrome gathering | Semaphore, South Australia

Venue: Semaphore Carousel, 81 The Esplanade, Semaphore.
Time: 11am to 2pm.

 

Use of the carousel – The carousel has 4 wheelchair anchor in points, plus a ramp. It also has benches for those who don’t use a wheelchair but may be a bit wobbly to sit on a horse.

There is a lovely grassed area with picnic tables and benches as well as shade should you wish to enjoy a picnic lunch. Please BYO food and drinks. 

If attending, please email kirstysale@live.com.au or phone/messagie 0434 371 729, by 27 November.

 


 

Sunday 19 November 2017
Rett syndrome gathering
|
Penrith, New South Wales               
Venue: Tench Reserve, Tench Ave, Penrith.
Commencement: 11am.

 

There will be a sausage sizzle with salads and soft drinks for all to enjoy. Please RSVP to Claude Buda via Facebook or call 0411 089 156 to enable him to know how many persons to cater for.

 


 

Sunday 19 November 2017
Rett syndrome gathering
| Glen Waverley, Victoria
Venue: GlenAllen School, 7 Allen St, Glen Waverley.
Time: 12.30pm to 4pm. 

 

If wishing to eat, please bring along your own food. However, soft drink will be available, as too, will facilities for making tea/coffee. If attending, please call 0418 561 796 or email  rettaust@bigpond.com 

 


 

2-4 November 2017
5th European Rett Syndrome Congress
| Berlin, Germany
Venue: Vienna House Andels, Landsberger Allee 106, Berlin.

 

RSAA was represented at the Congress by its Vice-President Claude Buda.  

Pictured below: Claude (at left), Paige 
Nues (rettsyndrome.org) (USA) and Walter 
Kaufmann (Boston Children's Hospital)

A copy of the Congress programme can be viewed by clicking on   http://www.rett2017.berlin       

 


 

Saturday 23 September 2017
2016/17 RSAA annual general meeting
| Sunshine West, Victoria
Venue: Global Food Equipment, 6 Grace Court, Sunshine West, Melbourne.

 

Guest speaker: James Shaw (Vice-President, Clinical Operations, Neuren Pharmaceuticals)

Topic: Trofinetide: The Journey to Phase III.  

 


 

Sunday 2 July 2017
Big Screen Charity Gala
| Healesville, Victoria
Venue: Memo Hall, Healesville.

 

Approximately 200 people attended the screening of the acclaimed documentary “The Eagle Huntress“, an occasion organised by Shelley and Peter Morley in memory of their Rett syndrome daughter Ella and as a fundraiser for the Rett Syndrome Association of Australia. Ella, who passed away in 2008, would have been 21 in July of this year. A photo of her can be viewed by clicking on the following file     Ella 21 flyer a

 


 

Sunday 19 March 2017
Rett syndrome gathering
|Deer Park, Victoria
Venue: Deer Park Club, Melbourne.

 

Pleasant afternoon enjoyed by members of 10 Rett syndrome families.

 


 

Saturday 18 March 2017
Rett syndrome gathering
| Semaphore, South Australia
Venue: Semaphore Carousel, Adelaide.

 

Eleven Rett syndrome families represented at what was a very successful day. 

 


 

15 October 2016
Rett syndrome gathering and dinner | Perth, Western Australia

 

Gathering – “Mandoon Estate”, Swan River Valley, Perth

Dinner – “Modo Mia Italian” restaurant, The burswood, Perth

 


 

15-17 September 2016
RTT50.1
|
Vienna, Austria

 

CELEBRATING the 50th anniversary of the first publication on Rett syndrome by Dr Andreas Rett, the meeting in Vienna reviewed “Where are we right now?” in terms of research (past and present)  and overall knowledge of the disorder.

 


 

27 May 2016
Susan Norwell (USA) presents “Learning and Communication Strategies in Rett Syndrome”
| Brisbane, Queensland
Venue: Brisbane International, Boondall.

 

An appreciation of what Susan is about can be gained by accessing  Susan Norwell Professional Development

 


 

13-17 May 2016
8th World Congress on Rett Syndrome
| Kazan, Russia

 

Further information about the Congress can be viewed by clicking on the following link   http://www.worldcongress2016.rettsyndrome.ru/         

Below left: 
World Congress - Kazan, Russia - May 2016
Olga Timutsa (President of the Russian Rett 
Syndrome Association (second from right) with, 
at far left, Nasim Bahran (Children's Hospital, 
Westmead, Sydney), Tony Cagliuso (RSAA), 
Helen Leonard (Australian Rett Syndrome Study) 
and Claude Buda (RSAA)

Australian representation at World Congress - Kazan, Russia - June 2016

 


 

19-21 November 2015
First RSAA National Conference
| Geelong, Victoria
Venue: Novotel Geelong
Conference theme: “The Rett Syndrome Journey: Pathways to Follow”

 

Additional information  about this event (including videos of most sessions) can be found on this website by clicking on the ‘About Rett syndrome’ tab above, then selecting ‘Selected resources specific to Rett syndrome’.